These days there is so much out there on the web that it is almost too overwhelming at times to find what you are looking for. Below we have added several links that might be of interest to you. Each of them is categorized for easier navigation.
As a side note, if one of you comes upon a site that you think would be valuable to those reading Karson’s Journey please send it to me so I can check it out and possibly add it to our list.
Click The Links Below For Many Helpful Resources:
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SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision - in alliance with a parent / professional partnership. |
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Lucile Packard Children's Hospital traces its roots to the Stanford Home for Convalescent Children, which was officially established in 1919. By 1970, the Convalescent Home had moved to larger quarters and changed its name to Children's Hospital at Stanford, although it remained a separate entity from the Stanford Hospital and Clinics. The link provided is to their data base of information regarding Trisomy 13. |
